Welcome to myAgios® Patient Support Services, helping you navigate the path ahead

myAgios is a customized support program for people living with pyruvate kinase (PK) deficiency, designed to provide personalized education and treatment support.

Call myAgios today at 1‑877‑77‑AGIOS (1‑877‑772‑4467)

Language support is available.

Patient
Education

Looking for one-on-one disease education and support in talking to your doctor about treatment options? Connect with an Agios Clinical Educator (ACE).*

Find your ACE

Getting
Medication

If you’ve been prescribed PYRUKYND, get help understanding insurance and coverage by connecting with a Patient Support Manager (PSM).*

Find your PSM

One team to support people living with PK deficiency!

*

ACEs and PSMs do not provide medical advice. For medical advice or treatment-related questions, please talk to your healthcare team.

For one-on-one education and learning about treatment options

Talk to an Agios Clinical Educator (ACE)

An ACE works closely with you, your family, and your healthcare team to provide education, resources, and community connections.

Your ACE can help with:

Individualized
Support

Meet with your ACE either in person or virtually to get compassionate support that will help you identify your goals and help you thrive

Educational
Resources

Find assistance with doctor discussions, information about your disease, explanations of the latest research, and treatment considerations

Community
Connections

Build connections through webinars, events, advocacy groups, and others like you

Find your ACE

For help with getting PYRUKYND

Connect with a Patient Support Manager (PSM)

Your PSM will help you find ways to make it easier to get your PYRUKYND prescription in hand.

Your PSM can help with:

  • Filling and getting your PYRUKYND prescription

  • Clearing up any insurance confusion

  • Speaking and working with your doctor

  • Helping you set treatment goals

  • Connecting you to events and a wider community

Find your PSM

Getting PYRUKYND

Personalized Education

You and your doctor will decide whether PYRUKYND is the right treatment for you. If you agree to PYRUKYND, your doctor will submit the PYRUKYND Start Form.

Support Through Enrollment

Getting started begins with one form that your doctor will submit to myAgios.

You will need to provide your consent for myAgios to contact you and your health plan, which you can do at your doctor's appointment or electronically. A PSM can help you with this!

Insurance Made Clear

Insurance coverage can be confusing. The myAgios team and your PSM will review your plan, explain what is covered, and outline any next steps.

After your health plan approves, PYRUKYND will be shipped directly to you.

Programs Designed
to Help

You may be eligible for financial assistance or other support programs designed to make access to PYRUKYND easier. Our team can help you explore available options and see which ones may apply to you.

Have questions or issues getting your prescription?

Call us at 1‑877‑77‑AGIOS (1‑877‑772‑4467), Mon-Fri, 8 AM to 8 PM ET.

Not a native English speaker? No problem.

myAgios support is also available in Spanish.

For more information about treatment, visit PYRUKYND.com.

It’s rewarding to be able to help someone through challenges and provide tools for their treatment journey.

Lana, RN, BSN, PACS

Patient Support Manager

We have programs that take the worry out of getting PYRUKYND

Financial support

We can figure out your needs and walk you through the financial assistance and coverage support programs that help people in different situations.

What type of health insurance do you have?

I have commercial insurance, either through my work or my family, or purchased through the marketplace.

$0 responsibility for those with commercial insurance who qualify, regardless of how much you make.

Talk to your doctor about applying if you’ve been prescribed PYRUKYND.

Please see full Terms and Conditions for more information.

Have questions about your eligibility for these programs? Get answers from a PSM.

Find your PSM

The PYRUKYND Copay Program lowers costs for eligible patients to $0

This program lowers costs for eligible patients to $0 per prescription if their copay exceeds that amount. To learn more about patient eligibility, call myAgios Patient Support Services at 1‑877‑77‑AGIOS (1‑877‑772‑4467), Mon-Fri, 8 AM to 8 PM ET.

Your ACE and your PSM are here to work as your team

ACE helps with:

  • One-on-one disease education and support in understanding treatment options
  • Support and resources for living with your condition
  • Community connections to others like you

PSM helps with:

  • Understanding your insurance
  • Getting PYRUKYND
  • Exploring ways to make PYRUKYND more affordable

Whether or not you are prescribed PYRUKYND, you can get connected today to your myAgios team. We’re ready!

Call us at 1‑877‑77‑AGIOS (1‑877‑772‑4467), Mon-Fri, 8 AM to 8 PM ET.

Language support is available.

myAgios resources & more

Get resources to help you along your myAgios path.

Find myAgios resources

Interested in PYRUKYND?

Learn more about the benefits and risks of PYRUKYND for those living with PK deficiency.

Learn more about PYRUKYND
INDICATION
IMPORTANT SAFETY INFORMATION

INDICATION

What is PYRUKYND?

PYRUKYND is a prescription medicine used to treat low red blood cell counts caused by the early breakdown of red blood cells (hemolytic anemia) in adults with pyruvate kinase (PK) deficiency.

It is not known if PYRUKYND is safe and effective in children.

Please see full Prescribing Information, including Patient Information.

PYRUKYND may cause serious side effects, including:

  • Rapid breakdown of red blood cells (acute hemolysis) has happened after suddenly interrupting or stopping treatment with PYRUKYND. You should not suddenly stop taking PYRUKYND.   If you have to stop your treatment with PYRUKYND, your healthcare provider should monitor you closely. Tell your healthcare provider right away if you develop any signs or symptoms of breakdown of red blood cells including yellowing of your skin or the whites of your eyes (jaundice), dark colored urine, dizziness, confusion, feeling tired, or shortness of breath

  • Liver injury has happened in people with another condition during the first 6 months of treatment with mitapivat when given at a dose higher than recommended for people with PK deficiency. Your healthcare provider will do blood tests to check your liver before you start treatment with PYRUKYND, monthly for the first 6 months of treatment, and as needed. Your healthcare provider may temporarily or permanently stop your treatment with PYRUKYND if you have abnormal liver tests. Tell your healthcare provider right away if you develop any signs or symptoms of liver problems including yellowing of your skin or the whites of your eyes (jaundice), nausea, dark colored urine, vomiting, pain in the upper right side of your stomach area or loss of appetite

The most common side effects of PYRUKYND were decrease in reproductive hormone (estrone) in men, increased salt from uric acid (urate) blood test, back pain, decrease in reproductive hormone (estradiol) in men, and joint pain (arthralgia).

These are not all the possible side effects of PYRUKYND. Call your healthcare provider for medical advice about side effects. You may report side effects to the FDA at 1-800-FDA-1088 or www.fda.gov/medwatch.

Before taking PYRUKYND, tell your healthcare provider about all of your medical conditions, including if you:

  • have liver problems

  • are pregnant or plan to become pregnant. It is not known if PYRUKYND will harm your unborn baby. Tell your healthcare provider right away if you become pregnant or think that you are pregnant during treatment with PYRUKYND

  • are breastfeeding or plan to breastfeed. It is not known if PYRUKYND passes into your breast milk. Talk to your healthcare provider about the best way to feed your baby during treatment with PYRUKYND

Tell your healthcare provider about all the medicines that you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements. PYRUKYND and certain other medicines may affect each other causing side effects. PYRUKYND may affect the way other medicines work, and other medicines may affect how PYRUKYND works. Know the medicines you take. Keep a list of them to show your healthcare provider or pharmacist when you get a new medicine.

Please see full Prescribing Information, including Patient Information.